ABSTRACT
Background: People living with and after cancer may experience complex physical and psychosocial issues requiring multidisciplinary support. While adults over the age of 65 are the group most commonly diagnosed with cancer, they also represent the group most under-represented in research. Therefore, this study aims to explore older adults' perceptions of priorities for research in cancer and haematological malignancies. Methods: A descriptive qualitative study was undertaken with sixteen older adults over the age of 65 who were living with or after a diagnosis of cancer. Participants were purposively recruited via a regional cancer centre and cancer advocacy organisations. Participants engaged in a one-to-one semi-structured telephone interview, which discussed their experiences of cancer, and their perceptions of cancer-related issues which they believed were priorities for research in the future. Qualitative data were thematically analysed. Results: Participants were overwhelmingly satisfied with the cancer-related care they received, but discussed a variety of issues related to their experiences of information, symptoms, and support beyond the hospital setting which warranted further research. Forty-two priorities for future research were categorised within six themes, containing a total of eleven sub-themes. Priorities for future research included the recognition of the signs and symptoms of cancer in older adulthood;research about cancer treatments for older adults;supporting the assessment and management of co-morbidities;the unmet needs of older adults living with and after cancer;the impact of COVID-19 on people living with or after cancer and on cancer services;and the impact of cancer on caregivers and family members. Conclusions: The results of this study represent a basis for future priority setting for research in the field of geriatric oncology. The results of this study have the potential to underpin priorities for research which are driven by the population who are most affected by, and most in need of research to address the complex issues associated with diagnosis, treatment, survivorship, and end of life care for people living with or after cancer in older adulthood. Legal entity responsible for the study: University College Dublin. Funding: Irish Research Council. Disclosure: A. Drury: Financial Interests, Personal, Full or part-time Employment: University College Dublin;Financial Interests, Institutional, Research Grant, I am a collaborator on the Pfizer-funded project ABC4Nurses, which is coordinated and managed by EONS: Pfizer;Non-Financial Interests, Invited Speaker: European Oncology Nursing Society;Non-Financial Interests, Advisory Role, I am an advisor on several EONS projects, including ABC4Nurses and RCC & HCC PROMS: European Oncology Nursing Society. All other authors have declared no conflicts of interest.
ABSTRACT
Background: There is limited understanding of how the experiences of people with cancer may change and evolve against the shifting landscape of COVID-19 incidence, mortality, vaccination and healthcare delivery. This study aimed to explore the experiences of cancer care among people affected by cancer during the COVID-19 pandemic using a longitudinal qualitative study design. Methods: Participants were recruited to this longitudinal descriptive qualitative study via social media advertisements. Sixteen semi-structured interviews were conducted with people living with, after or caring for someone with cancer at three timepoints over a six-month period during the COVID-19 pandemic. Interviews were recorded, transcribed and analysed thematically. Results: Participants described feeling afraid and keeping safe through prevention and shielding strategies. Some had been vaccinated by phase 2 but many had not. Although hospitals felt safe and efficient, some participants felt COVID-19 restrictions were being used an excuse for compromised care. Substitution of face-to-face appointments with telehealth services restricted participants' access to professional and social support and reliable information. In phase one participants felt public health measures to reduce transmission of COVID-19 had created a sense of not missing out, but this feeling had largely shifted by phase 2 and the continued restrictions on social interactions amplified feelings of isolation. Conclusions: This study highlights opportunities for longitudinal qualitative research to explore evolving experiences of people with cancer in the context of changing socio-cultural and healthcare provision during the COVID-19 pandemic. Legal entity responsible for the study: The authors. Funding: National University of Ireland, Galway, Ireland;Promotions Project Phase 2 Research Consolidation Grant. Disclosure: All authors have declared no conflicts of interest.